Sebastian is a Senior Associate Solicitor in the firm's Family Law Department. Although Sebastian is a keen cyclist already, this event will see him training like never before for the 4 day, 300 mile ride, that leaves Crystal Palace on 19 April 2017 and arrives at the Arc de Triomphe on 22 April.
Sebastian will be focusing on day one in particular which will take the Peloton from Crystal Palace to Calais, a distance of 100 miles. In competitive style he will be trying to ensure he arrives at Dover first to board the ferry. The ultimate aim of the event is to raise at least £1,500 for MNDA. Sebastian and the firm hope very much that the target can be smashed in support of this worthy cause.
Sir Bradley Wiggins has kicked off his fundraising and if you would like to contribute too please visit Sebastian’s Just Giving page. All donations no matter how small WILL make a difference.
What is MND?Motor Neurone Disease is terminal and there is currently no treatment or cure. Average length from diagnosis to death is 18 months. In that 18 months the person with MND will lose their ability to speak. Then the muscles die – all of them. This leaves the sufferer unable to walk, talk, move, blink, go to the toilet or swallow. They have to be fed through a peg fitted into their stomach.
What it doesn’t affect is the brain – that still functions normally so you end up with a person trapped inside a body that in effect has already died.
MNDA South Essex BranchThe South Essex branch comprises of five people, all volunteers. They work extremely hard to raise funds and awareness for the disease.
They spend money on lots of different things such as;
- Converting a bathroom to a wet room
- Conversions and adaptations to house so people can remain at home
- Small disability devices and ramps for wheelchairs
- Stair lifts
- Communication aids
- Respite care
- Travel to hospital appointments
They also arrange social events for those with MND and their carers to meet up and provide support to eachother.
The local website is www.mndsouthessex.org/